Відео

I’m hearing so many similar things here😔 Can you tell me if you have ever associated GA skin/rash with lupus?

If I go groceryshopping, on a bad day I might have to sit down every couple of minutes. I can no longer walk uphill at all. I used to go on long hikes when I was still healthier and just thinking about it makes me cry.

Anyone here who's had sunken skin with lupus? I have it on one arm and forehead, looks horrible.

Gudday ma'am..it's been ,3years my only daughter had lupus..shed been in bedridden situation. .she become very thin and cannot walk...we spend so much for her medication...for now we can't afford for now for her maintenans medicine and laboratories...please help us ma'am because some of her medicine came from other countries...please help us madaam any means even just the medicine...I'm begging for your help for my only daughter..I'm willing to send all her medical records if it is required....please ma'am help us..I can't avail help here in our country....please ma'am for the life of my only daughter...thanks and godbless..

Spoken just like someone who DOES NOT HAVE THE dusease. Wasted words

I just met a girl who I really like a lot who has lupus and I'm trying to learn all I can about it so I can help her the best I can because I want to be there for her no matter what

One key to dealing with it is to NOT STRESS over anything. I used to stress so much before the diagnosis, and now ive been more in control of my emotions than ive ever been because i know i cant afford to get sick

So the best way that you suggest that I can treat lupus is to go ask my care team... Is that why I clicked on this video?

Please I’ve a question, what’s the best way for lupus female patient to lose weight? Thanks

I'm currently saving up my strength for the next 2 days to go to my granddaughters bday sat.....yep that's my life. My full time job is simply getting myself up n dressed for the day. Family don't understand y it takes me 4 hrs to get ready.

Women or men with Lupus is not a joking matter, hope she gets it, will be one hell of a wake up call. I've had it for 12 yrs, my back now my face it's horrible!!

Nice video. I'm a male and I was recently diagnosed with Lupus. I'm involving myself with a few support groups and working with my medical team. Before my diagnosis I knew very little about the disease.

When she described driving my van, I felt that 😂

This is new my daughter have blood between her teeth

Don't forget we're all in this fight together 💪

Praying for you sisssy 🙏 💜 ♥️

💜 WE ARE SLE WARRIORS 💜

Thanks for sharing! Isn't just me being lazy as others might think or even say. Each day is a struggle!

Thank you!

❤ So many things to relate.. from one SLE to other .. loved your humour

Oh my gosh I can so relate ❤

Recently, and also unfortunately, a short round of antibiotics sent my Lupus into a rage. I never expected this, and it's miserable. 😞

I, too have lupus (almost 16yrs) as well as other complications ( nephritis, hypothyroidism, anemia, alopecia just to name some) and have been on dialysis. I just want to say to the ones who suspect they have it to take charge and talk to a doctor right away. The sooner they figure out what's going on, the better. Also DO NOT be afraid to speak up and be persistent if the doctor doesn't believe you. If you must find another doctor, this disease is too devastating to be taken lightly by a doctor who won't listen. For my newly diagnosed lupies, I know this is a lot, but remember you are not alone. One of my biggest advice is to please be compliant with your medications and doctors' appointments. I know it's easier said than done with everything we have going on but trust me it's not worth more meds, more hospital stays/visits or missing out with loved ones. Take it from me, taking your medications and going to your doctors' appointments will save you from so many problems. Not to mention your life.. Phew! I didn't mean to go on like this but if I can spare someone from all the unnecessary heartache then it's worth it. Remember we have Lupus, Lupus doesn't have us! Peace and Love everyone.

Well this hasn’t aged well. 5 years later still no cure or relief for lupus.

Praying that you find a cure for this, god bless you

I spent over five years in bed before and then after being diagnosed. My sister said she thought i was on meth. I'm 5'9, and got down to 110lbs. I've been really sick, but instead of seeing what lupus is, (nobody in my family history has had autoimmune issues, so the multiple ones I've been dx'd with aren't understood by my family) she just assumed I'm a meth addict. It breaks my heart, but what do you do.

Lupus and Me

Mines is more PHYSICAL stress. Working too many hours. Learning to listen to my body and what triggers. I get chills off and on, face rashes and joint pain.

invisable

stress does not help at all low vitamin d levels took 40 years find out i can not absorb vitamin d no pth ended up lupus

Why are you not streaming the afternoon panels? Very disappointed.

I learned a lot. Thank you.

Just got diagnosed with this. Thank you 💜💜💜

My daughter has lupus, she's waiting on her 3rd kidney transplant

So sorry you have to deal with this dreadful disease! My 27yr old daughter has SLE and waiting on 3rd kidney transplant.

❤

If you Google PTSD 😢it can cause lupus too 😢😢😢😢😢😢

I'm 73 and found out last fall with lupus. I also have incontrollable diabetes, osteoporosis, CKD, bursitis from a car accident seat belt injury and because the truck was huge... I have PTSD. And i googled lupus and PTSD go together 😢😢😢😢😢😢😢😢 God bless all of you ✝️🙏❤️

I'm 73 i just found out I have lupus. But I'm a diabetic, osteoporosis, CKD. A truck hit me last year and caused me to get bursitis from the seat belt. Plus PTSD too😢😢😢😢😢.

How do you get doctors to pay attention to lupus and diagnosis

just wish i could get a diagnosis . all symptoms are there. not looking for sympathy, just truth . 😊😢

I needed this message today. THANK YOU . 😊.

I pray for all the people with this, may God love you and keep you safe.

Why can't Lupus patients qualify for permanent disability? I mean this sounds worse than RA and many mailmen and army vets get disability for lame stuff. I pray for all the people with this, may God love you and keep you safe.

This is my story too. Praying for you 💜